We can’t feel the pain of a hydrocephalus patient ourselves, but we try to understand it. We were lucky enough to meet Julia, Sarah and Madita. They have all had hydrocephalus since birth. Their lives have been upside down for a long time. We were impressed by their infectious zest for life and they were enthusiastic about our campaign. Find out more about their lives with hydrocephalus and those of other patients.
Medical Professional
This information is meant for medical professionals only. Please confirm that you are a medical professional before accessing the information.
Together with our cooperation partner Christoph Miethke GmbH & Co. KG we have developed the patient diary app HC&ME. The application is primarily intended to give patients the opportunity to comprehensively document and evaluate their life with hydrocephalus. Furthermore, the app also serves as a digital patient passport, which would always be with the patient and is not forgotten during visits to the doctor, for example.
